26 for Life

"You can't be 53. I'm only 27."

"I hear you're considering Accounting."

"Who are you?"

It is a comfortable spot. Elvis, the cat sits near me. The music is playing. I have an abundance of books, and some knitting beckoning me. The teenagers are downstairs, happy to be free for a while on a Friday night before an exciting, but hectic Saturday. Hubby has the big tv going in his kingdom. All is right with the world. But really it's not, as the world has been tilted on its axis for some time, and the end of the tilt is not in sight.

Yesterday, I read an article. Seth Rogen testified before members of Congress regarding Alzheimer's, and dementia. No disease has a barrier stopping at the wealthy or connected, and certainly Alzheimer's, and dementia are not exceptions. One quote stood out, "so few people share their personal stories". (Seth Rogen Testifies, ABC News)

Here are the conversations involving the quotes above:
Last weekend:
Daddy - "Who are you?"
Me - "I'm Evelyn, your daughter."
Daddy - "You're my daughter? How long have I known you?"
Me - "Well, I'm 53 so I would say all 53 of my years."
Daddy - "You can't be 53. I'm only 27."
Me - "OK. I'm 26."
Daddy - "That's better."
Me - "Works for me."

October:
Daddy - " I hear you're thinking of East Carolina."
Me - "Sure, I'm thinking of East Carolina."
Daddy - "I hear you're considering Accounting."
Me - "Yes sir. I bet if I go to East Carolina, major in Accounting, and get a degree, I could make good money, meet the love of my life, have a couple of kids, and a nice house."
Daddy - "That sounds like a good life."
Me - "Yes, Daddy, it does, doesn't it?"
(Since I actually graduated from East Carolina University with an accounting degree in May of 1985, obviously I was in high school here.)

Every family touched by this has stories - some of faith, some of loss, some of blessings, and some of tragedy. We have been blessed that my brothers, and I have pulled together as a team. Some families are not able to work it out. Resources, and faith are strained, and relationships go with them. There simply has to be a way. As for me, I will continue to be whatever age Daddy needs me to be until he forgets me completely, and then I will pray, and cry even harder.

“Those with dementia are still people and they still have stories and they still have character and they are all individuals and they are all unique. And they just need to be interacted with on a human level.”

- Carey Mulligan

Down the Long and Lonely Highway

In just a few short hours, I will have our sons loaded up and hit the road. It's time for our monthly pilgrimage to my parents. I'm always vaguely amused when I return and run into acquaintances who ask if I enjoyed myself. When the boys were younger I was often asked if I got a break by heading there. Uh, no. I've written a couple of times about what we are facing. Daddy has dementia.

As is my way, I will try to find something amusing in the trip. Dark humor is my friend. Sarcasm is my constant accompanist. So I'll roll my eyes at some fifty something road warrior who is trying to text and drive on the interstate and come up with some something to say. I'll sit there and patiently pretend to have not heard the same story a gazillion times while in my mind, I do my checklist. "Has he said this yet? What about that story? Ah, there it is." Give him his Father's Day card early. He won't remember that he didn't get it on Father's Day. Shoot, that's because he won't remember he got it. The boys will stay up all night watching tv and I'll just ignore that. Hey, they're supposed to get to do what they want to at their grandparents, right? Does it matter that I'm there? Nope. This trip we're throwing in a side trip to the old hometown. So I get to visit with even more elderly relatives. But at my age, it's nice to be the young'un and I especially love how they all tell me how little I still am (keep in mind that all things are in relation to them). No trip is complete without the trip to the cemetery.  Good thing I got that Ancestry.com membership. We need someplace to load up the pictures to that will appreciate my skill at taking a picture of a gravestone.

Through all of this our teen sons will show a calmness and compassion that humbles me. They will take Daddy to the restroom and make sure he doesn't lose his way, while pretending that they were the ones who needed to go. They understand the need for dignity.

I ran into someone who told me that some people think she's cold but she had never really experienced helping the aged. Her parents were both dead by the time she was in her mid-twenties and her grandparents had long been gone before then. While it briefly flickered through me how much less complicated my life would be, what really stayed in my soul was the thought of how much less I would have been. I've developed a strength and compassion that I never knew I had in me. Not to mention the driving skills of a short haul trucker.

Someone else once told me that if it stressed me out so much then I just shouldn't go. But that smacks of a selfishness that I always knew I didn't have in me. And it does stress me out - before I go and after I return. But while I'm there, it doesn't stress me out at all. When I read essays such as the one our guest columnist, Jim Zisa wrote this month, "The Profundity of Moment" , when I consider how much my dear friend Mary would love to call her Mama and chat, but can't because she's gone, or think of how much another dear friend would have loved to share her beautiful girls college graduations with her parents, well, I'll climb right into that SUV and make my way on down the road. There is a grace to the time spent with love. So I'll come back a little worse for wear, but better for spirit. Shouldn't life be about doing what is hard? Doesn't love come with hardship?